最近諮詢了一位腦性麻痺患者的母親,這位患者已經20多歲了,可是他的情況卻很糟糕,四肢瘦小,嚴重的脊椎側彎,整個人無力攤在輪椅上,連獨立坐立或移動的功能都沒有,上下床,移位都是需要別人的幫忙。經過檢測之後,上肢的張力真的太強了,所以很僵硬,也導致手肘,手腕以及手指肌肉攣縮;下肢的張力高但不比上肢嚴重,至少膝蓋,腳踝肌肉沒有明顯的攣縮,不過骨盆卻因為脊椎側彎的關係而傾斜。
經過詢問之後,才發覺在這十多年的時間,他也沒有接受過適當的物理治療,只是在政府醫院及私人醫院有給人拉筋,按摩,針灸而已,所謂的運動治療一次都沒有進行過。等到他16歲時醫院就減少他的治療時間甚至要排期排很久才能去治療,而且告訴家長接受事實就好了。
如果以前能夠接受適當的物理治療,如果以前有遇到對的醫生及物理治療師,是不是他的情況就不會像現在這麼糟糕呢?不過這也已經是過去式了,一切已經不能回頭,我們只能從現在的狀況開始做適當的物理治療,但願病患活動能力會好一點,至少他的身體狀況可以好一些,不必一直進出醫院,減輕家人的負擔。
Recently I consulted a cerebral palsy patient’s mother, now this patient is 20 over years old, but his situation is very poor, thin limbs, severe scoliosis, unable to stand, whole body lying in a wheelchair, sitting or any moving functions are not function well. On the bed shifting, all need other people’s help. After examination, the tension of the upper limb is really strong, it is very stiff, and also lead to elbow, wrist and finger muscles contracture; Lower limb joint stiffness is less than upper limb, at least the knees, ankles muscle contracture is no obvious, but his pelvis tilted is because of scoliosis.
Patient was found his have development delay when he is 1 year old, but in this period he has not received any proper physical therapy, only in government hospitals and private hospitals give some medication, surgery, massage and acupuncture only, one exercise therapy have not been doing. When he was 16 years old, they start to cut down his hospital treatment time even few week once or few month once, and told parents to accept the fact.
If previously he had received proper physical therapy, if they met the proper doctor and physical therapist, his situation would not been so bad? But this is already past, everything can not start over again, we only can start the appropriate physical therapy treatment, and hopefully his activity will be better, have better physical condition, do not have to access hospitals quite frequent and reduce the burden on his family member.